Enobia’s Results from the Hypophosphatasia Impact Patient Survey

In October 2009, Enobia launched the Hypophosphatasia Impact Patient Survey (HIPS), the first self-reported patient survey designed to learn more about what it’s like to live with hypophosphatasia (HPP). Enobia would like to thank all the patients and caregivers who participated in this survey. The insights we have gained will be an important source of knowledge for the entire community.

So far, data from HIPS has been reported using surveys completed by 87 patients or caregivers. The findings were presented at the 2010 American College of Medical Genetics (ACMG) Annual Clinical Genetics Meeting.

View the HIPS Results

Related Enobia Links:

• About Hypophosphatasia
• Diagnosing Hypophosphatasia
• Treating Hypophosphatasia
• Getting Involved in a Clinical Trial for HPP
• Additional Resources
• Enobia Homepage

Results Highlights